IBD Research Unit
7th Lynch Syndrome Evening
For families who want to learn the latest on
Lynch Syndrome
formerly known as Hereditary Non-Polyposis Colorectal Cancer (HNPCC)
Date: Wednesday, November 1, 2017
Place: Mount Sinai Hospital, 600 University Avenue, Toronto
18th Floor Auditorium
Time: 7:00 p.m. – 9:30 p.m.
Refreshments at 6:45pm
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| Welcome and Moderator: |
Dr. Steve Gallinger |
| Director, Zane Cohen Centre for Digestive Diseases and Co-Director of the FGICR |
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| The latest update in genetics (Slides) |
Dr. Raymond Kim |
| Dr. Kim is the geneticist at the Zane Cohen Centre for Digestive Diseases and other hereditary cancer clinics in downtown Toronto. He will review the latest updates in the Federal law to prevent genetic discrimination, new testing families suspected of having Lynch syndrome, and the emerging genetic repair technology called CRISPR. |
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| Immunotherapy - a new therapy to treat Lynch Syndrome cancers? (Slides) |
Dr. Uri Tabori |
| Dr. Tabori is an oncologist at the Hospital for Sick Children in Toronto and head of an international consortium for children who inherit Lynch syndrome from both sides of the family. He runs a clinical trial for immunotherapy, which is a new type of drug that may be an important therapy to treat Lynch syndrome cancers. |
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| Stomach cancer and screening in Lynch Syndrome (Slides) |
Dr. Savtaj Brar |
| Dr. Brar is a surgical oncologist at Mount Sinai Hospital and heads up a high-risk screening program for families at risk for developing stomach cancer. He will review stomach cancer and discuss whether screening is needed in Lynch syndrome families. |
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| Patient’s Perspective (Slides) |
Teresa Tiano |
| Teresa will share her experiences with Lynch syndrome. |
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| Question Period | |
| A chance for you to ask questions of our expert panel | |
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For questions, please email: Melyssa.Aronson@SinaiHealth.ca or phone: 416-586-4800 ext. 2401 or 1-877-586-5112 ext. 0
This event is sponsored by Ann McLaughlin and Joe Aiello.
3rd Familial Polyposis Education Night
For families who want to learn the latest on FAP & MAP
Date: Tuesday, May 11th, 2021
Place: Virtual Zoom Meeting
Time: 7:00 p.m. – 9:30 p.m.
| Welcome and Moderator: |
Dr. Zane Cohen |
| Director, Zane Cohen Centre for Digestive Diseases and Co-Director of the FGICR |
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| Pre-Implantation Genetic Testing |
Diane Myles Reid |
| Diane Myles Reid is a genetic counsellor at Mount Sinai Hospital in Toronto specializing in prenatal and reproductive genetics. |
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| Managing Desmoid Tumours in Familial Polyposis |
Dr. Abha Gupta |
| Dr. Abha Gupta is a staff oncologist at Sick Kids and Princess Margaret Hospitals. Her clinical work and research focus on delivering quality information and services to adolescents and young adults with sarcoma and desmoid tumours. |
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| Lower GI screening & polyp management following polyposis surgery |
Dr. Rob Gryfe |
| Dr. Gryfe is a colorectal surgeon and scientist at Mount Sinai Hospital. His clinical and research interests include understanding how hereditary conditions affect the risk of developing cancer and polyps, as well as cancer prognosis and response to treatment. |
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| Patient’s Perspective | Linda Mazzone |
2nd Familial Polyposis Education Night (2)
For families who want to learn the latest on FAP & MAP
Date: Tuesday, November 7, 2017
Place: Mount Sinai Hospital, 600 University Avenue, Toronto
18th Floor Auditorium
Time: 7:00 p.m. – 9:30 p.m.
Refreshments at 6:45pm
| Welcome and Moderator: |
Dr. Zane Cohen |
| Director, Zane Cohen Centre for Digestive Diseases and Co-Director of the FGICR |
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| The Latest on Upper Gastrointestinal Screening (Slides) |
Dr. Jeff Mosko |
| Dr. Jeffrey Mosko is a gastroenterologist at St. Michael's Hospital in Toronto. He specializes in advanced endoscopy including ERCP, EUS and endoscopic oncology. |
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| Pediatric Issues in Familial Polyposis (Slides) |
Dr. Carol Durno |
| Dr. Carol Durno is a pediatric gastroenterologist at the Hospital for Sick Children and Scarborough Centenary Hospital, with an interest in caring for children, teenagers and families with familial polyposis. Dr Durno is an Associate Professor of Pediatrics at the University of Toronto. She is involved with various research projects in the FGICR with a special interest in polyposis and biallelic mismatch repair deficiency. | |
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| Post-Surgical Quality of Life and Support (Slides) |
Dr. Erin Kennedy |
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Dr. Erin Kennedy is a Colorectal Surgeon at Mount Sinai Hospital and researcher at Mount Sinai’s Samuel Lunenfeld Research Institute focusing on patient centered care and shared decision making in surgery. She is an Associate Professor in the Department of Surgery and the Institute of Health Policy, Management and Evaluation. |
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| Patient’s Perspective | Stephanie Lerner |
| Stephanie will share her personal experience with FAP. |
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| Question Period | |
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To RSVP online here: 
Please RSVP at www.zanecohencentre.com/event/polyposis or call: 416-586-4800 ext. 5112or 1-877-586-5112 ext. 0
8th Lynch Syndrome Evening
8th Lynch Syndrome Education Night
for families who want to learn the latest on
Lynch Syndrome
formerly known as Hereditary Non-Polyposis Colorectal Cancer (HNPCC)
Date: Wednesday, September 25th, 2019
Place: Mount Sinai Hospital, 600 University Avenue, Toronto
18th Floor Auditorium
Time: 7:00 p.m. – 9:30 p.m.
Refreshments at 6:45pm
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| Welcome and Moderator: |
Melyssa Aronson |
| Senior Genetic Counsellor |
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| Hot Topics (Slides) |
Genetic Counsellors Zane Cohen Centre |
| The genetic counsellors at the Zane Cohen Centre have a combined work experience of over 50 years caring for Lynch syndrome families. They will address the most commonly asked questions by our families, on topics ranging from cancer risk to screening to reproductive testing. | |
| Treating Cancers in Lynch Syndrome - what have we learned? (Slides) |
Dr. Grainne O'Kane |
| Dr. O’Kane is a medical oncologist at Princess Margaret specializing in gastrointestinal cancers, and has a special interest in Lynch syndrome. She will update us on the evolving knowledge around chemotherapy and immunotherapy in the treatment of cancers in Lynch syndrome. |
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| Tips on getting the best care from your primary care provider (Slides) |
Dr. June Carroll |
| Dr. Carroll is a family physician at Sinai Health System, as well as the Sydney G Frankfort Chair in Family Medicine and a Professor and Clinician Scientist in the Department of Family & Community Medicine at U of T. She spoke at our very first education night in 2003 and has been a leader in educating primary care providers about hereditary conditions. |
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| Patient’s Perspective |
Roslyn Fitzpatrick |
| In honour of Dr Henry T Lynch: Roz who is a 17 year colorectal cancer survivor and Lynch patient, will speak on her many years as the proband in her family, collaborating with Dr Lynch and the importance of raising awareness and education on Lynch Syndrome as a living legacy to Dr Lynch. | |
| Question Period | |
| A chance for you to ask questions of our expert panel | |
6th Lynch Syndrome Evening
Introduction to Lynch Syndrome Evening 2015
Moderator: Dr. Steven Gallinger
The latest research in Lynch syndrome
Speaker: Dr. Robert Gryfe
Description: Dr. Gryfe is a colorectal surgeon and scientist at Mount Sinai Hospital. He has completed several studies on Lynch syndrome and will discuss the latest research on cancer risk, screening and prevention in Lynch syndrome.
Slides: link (PDF)
Urinary tract cancer – symptoms, screening and treatment
Speaker: Dr. Jeff Spodek
Description: Dr. Spodek is the Chief of Urology at the Rouge Valley Health System. He works at the Centenary site in Scarborough, Ontario. He completed his medical training at the University of Western Ontario in 1998 and completed his fellowship training in Urology in 2003 at the University of Western Ontario. He will be giving an overview on the types of urinary tract cancers seen in Lynch syndrome including kidney, ureter and bladder cancers.
Slides: link (PDF)
Understanding Insurance and Genetic Testing
Speaker: Brent Mizzen
Description: Brent Mizzen is Director, Policy Development for the Canadian Life and Health Insurance Association (CLHIA). He is responsible for policy development and analysis on industry issues as well as responses to policy demands from government. Brent will give us the background on insurance and genetic testing, how companies assess individuals for insurance policies, and what the industry's position is on genetic testing.
Slides: link (PDF)