Where can I Learn More about PJS?
The Familial Gastrointestinal Cancer Registry is a family study centre for families with different inherited polyp syndromes, including PJS. The focus of our Registry is to help families learn what steps can be taken to reduce the risk of cancer. We provide educational materials so that people can keep up to date with current treatment and research news.
Having access to practical information makes you feel less alone and may relieve some of the uncertainty which comes with a diagnosis of a rare disease. Referral to specialists across Canada with a particular interest in PJS is part of our service. Learning about PJS will allow you to make better health care decisions for yourself and your family.
If you would like to know more about PJS, please contact us.