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Polyposis Education Night, September 24th, 2015
Polyposis Education Night

We were pleased to present the Polyposis Education Night on September 24th, 2015.   The evening was hosted by Dr. Zane Cohen, director, Zane Cohen Centre for Digestive Diseases. 

Evening highlights included informative talks on the following:

  • The History of the Familial Polyposis Registry, from Terri Berk, who many of you remember as the former coordinator of the polyposis registry
  • The Genetics of Familial Polyposis, from Kara Semotiuk & Laura Winter, Genetic Counsellors at the FGICR
  • Psychosocial Aspects of Familial Polyposis, from Dr. Tae Hart, Clinical Psychologist and Researcher
  • Surgery in Familial Polyposis, from Dr. Zane Cohen, Colorectal Surgeon and Director of the Zane Cohen Centre for Digestive Diseases and Co-Director of the FGICR
  • Familial Polyposis: A Patient Perspective

Please find the links and videos to these talks here: Link

6th Lynch Syndrome Education Night, May 27th, 2015.

We were pleased to present the 6th Lynch syndrome education night on May 27th, 2015.   The evening was hosted by Dr. Zane Cohen, director, Zane Cohen Centre for Digestive Diseases.  

The audience - the largest to date - heard the latest information about cancer research from Dr. Robert Gryfe. He has completed several studies on Lynch syndrome and will discuss the latest research on cancer risk, screening and prevention in Lynch syndrome.

Dr. Jeff Spodek is the Chief of Urology at the Rouge Valley Health System. He works at the Centenary site in Scarborough, Ontario.  He completed his medical training at the University of Western Ontario in 1998 and completed his fellowship training in Urology in 2003 at the University of Western Ontario.  He will be giving an overview on the types of urinary tract cancers seen in Lynch syndrome including kidney, ureter and bladder cancers.

Brent Mizzen is Director, Policy Development for the Canadian Life and Health Insurance Association (CLHIA). He is responsible for policy development and analysis on industry issues as well as responses to policy demands from government.  Brent will give us the background on insurance and genetic testing, how companies assess individuals for insurance policies, and what the industry's position is on genetic testing.

The event ended with a long question and answer discussion with our panel of experts dealing with everything from diet and nutrition to the risk of developing secondary cancers in LS patients with a previous diagnosis.

Feedback from the patients and their families noted that ‘knowledge is power’ and that there are ‘not many other information sources’ available.

Looking forward to future events, the consensus was summed up by a patient who wrote ‘thank you, you have helped my family enormously”.

Please find the links and videos to these talks here: Link

NEW IN FALL 2015: A Meeting for Families with Familial Polyposis

Further details to come

5th Lynch Syndrome Education Night, June 11th, 2013.

We were pleased to present the 5th Lynch syndrome education night on June 11, 2013.   The evening was hosted by Dr. Zane Cohen, director, Zane Cohen Centre for Digestive Diseases.  

The audience - the largest to date - heard the latest information about cancer risk and screening from Dr. Robert Gryfe and Dr. Sarah Ferguson. They highlighted the differences between the Lynch syndrome genes (MSH2, MLH1, MSH6, PMS2 and EPCAM) on the type of cancer that develops and the risks associated.  

Jenna Albiani, PhD student, clinical psychology, taught us about the experience of parents with Lynch syndrome and gave great advice on talking to children about genetic testing. Kathryn Cosgrove shared her story about fighting cancer and having Lynch syndrome. Her session brought a very personal and moving perspective.

The event ended with a long question and answer discussion with our panel of experts dealing with everything from diet and nutrition to the risk of developing secondary cancers in LS patients with a previous diagnosis.

Feedback from the patients and their families noted that ‘knowledge is power’ and that there are ‘not many other information sources’ available.

Looking forward to future events, the consensus was summed up by a patient who wrote ‘thank you, you have helped my family enormously”.

Please find the links to these talks.

Dr. Robert Gryfe - Highlights from the latest research in Lynch syndrome

Slide Presentation

Dr. Sarah Ferguson - Gynecologic Cancer in Women with Lynch Syndrome

Slide Presentation

Jenna Albiani - The Next Generation: The Experience of Parents with Lynch Syndrome

Slide Presentation

Symposium on Hereditary Gastrointestinal Cancer, June 17th, 2011

June 17th, 2011

  • To discuss tumour pathology in terms of identifying and managing Lynch Syndrome patients
  • To describe screening and management for Lynch, non– Lynch Syndrome and gastric cancer patients
  • Outline and evaluate current criteria to identify Lynch syndrome, MutYH–Associated Polyposis and Familial Adenomatous Polyposis
  • The event will run from 9:30 am to 4:00 pm
  • Lunch and light refreshments will be provided

To register online click here

Speakers

  • Zane Cohen, MD, FRCSC
    Director, Zane Cohen Center for Digestive Diseases
    Chairman Division of General Surgery, Department
    of Surgery, University of Toronto; Professor
  • Steven Gallinger, MSc, MD, FRCSC
    Co-Director, Zane Cohen Center for Digestive Diseases
    Head, Division of Hepatobiliary/Pancreatic
    Surgical Oncology, UHN; Professor, Department of
    Surgery, University of Toronto
  • Aaron Pollett, MSc, MD, FRCPC
    Staff Pathologist, Mount Sinai Hospital; Assistant
    Professor, Department of Laboratory Medicine and
    Pathobiology, University of Toronto
  • Eugene Hsieh, MD, FRCPC
    Assistant Professor, Department of Laboratory Medicine
    and Pathobiology, Faculty of Medicine, University
    of Toronto; Staff Pathologist Sunnybrook
    Health Sciences Centre; Women’s College Hospital
  • Blaise Clarke, MD
    Staff Pathologist, Assistant Professor, Department
    of Laboratory Medicine and Pathobiology, The University
    Health Network, Toronto General Hospital
  • Lea Velsher, MD, CM, FRCPC, FCCMG
    Clinical Geneticist, North York General Hospital
    Lecturer, Department of Laboratory Medicine, University
    of Toronto
  • Robert Gryfe, MD, PhD, FRCSC
    Staff Surgeon, Department of Surgery, Mount Sinai
    Hospital, Princess Margaret Hospital; Assistant Professor,
    Department of Surgery, University of Toronto
  • Carol Swallow, MD, FRCSC
    Head, Division of General Surgery, Mount Sinai Hospital;
    Staff Surgeon, Department of Surgical Oncology,
    UHN, Princess Margaret Hospital; Associate
    Professor, Department of Laboratory Medicine and
    Pathobiology, Professor Department of Surgery,
    University of Toronto
  • Peter J. Ainsworth, BSc, MB, ChB, PhD, FRCPC
    Director, Molecular Diagnostic Lab London Health
    Sciences Centre
  • Eva Tomiak, MD, FRCPC, FCCMG
    Clinical Geneticist, Inherited Cancer Programme,
    Department of Genetics, Children’s Hospital of
    Eastern Ontario; Assistant Professor, Department
    of Medicine, University of Ottawa
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